Functions to the administrator can take 48 hours to course of, which implies a delay in getting approval may go away her son with out medicine.
Mrs Chellen mentioned the hospital had tried to get her son off the remedy prior to now, arguing it wasn’t making sufficient of a distinction to his well being to warrant its excessive price.
She admitted her son had continued to point out a decline in his cognitive skills however had gone from needing to be hospitalised each third day and dropping the power to stroll, to operating, speaking, laughing, and taking part in.
Mrs Chellen managed to maintain her son on hashish oil after presenting a letter from a number one Melbourne neurologist backing the remedy, however now fears the hospital is making an attempt to withhold it once more in a bid to cut back bills, a declare that was denied by a hospital spokeswoman.
“I’m actually on edge … as a result of finally if we don’t get this script tomorrow, I’m going to must carry him down there and inform them to confess him into the hospital,” she mentioned on Wednesday.
“To go and take off chilly like that, with no weaning course of, no alternative, it’s actually endangering his life, and I’m not going to do this at residence and watch him undergo.”
It’s not the primary time a hospital bungle has gotten in the best way of her son’s entry to remedy.
Mrs Chellen mentioned it took the hospital seven weeks to inform them of the preliminary TGA approval for her son’s remedy after it had been granted, solely to search out out that they had prescribed the flawed power.
Later, the pharmacy on the hospital, the place her son was a affected person on the time, wouldn’t enable her to purchase the drugs with out prior approval from the hospital board, leaving her with no different choice however to search out one other pharmacy keen to order it in.
A Youngster and Adolescent Well being Service spokeswoman mentioned PCH hadn’t stopped submitting purposes to resume hashish oil prescriptions, and drugs prices – which range from affected person to affected person – weren’t thought of in selections to resume TGA approval.
On the time of writing, the TGA approval software for Mrs Challen’s son was nonetheless pending.